My Story

I am running the Cardiff Half Marathon 2026 with Tŷ Hafan Children's Hospice.

This charity is extremely close to my heart, as it currently supports my nephew Talis, along with his big sister Ava, and my sister and brother-in-law Amy and Ryan.

Even though Talis and his big sister Ava has the same genetic condition, a Mitochondrial disease called Leigh's syndrome. Talis's life is limited as he presents with faster onset symptoms. Leigh's syndrome is a rare genetic disorder that affects 1 in 44,000 live births. It causes the central nervous system to degenerate. The disease is progressive and neurodegenerative, marked by rapid deterioration of motor and cognitive functions.

The most common being seizures and respiratory failure. Talis presents with a lot of symptoms ranging from seizures, poor swallow, no head or trunk control, breathing difficulties (the list goes on). There is no cure!

With most of the Ty hafan's hospice care funded by charitable donations, costs are rising. Ty Hafan's ambition is that when a child's life will be short no family should have to live it alone. For every child they are supporting, there are another nine children with life-shortening conditions in Wales, who aren't currently supported by a children's hospice. With the increasing need for complex needs children and families to gain access to their services, this is one of the upmost reasons why I am trying to raise money for this amazing charity so it can continue to support children and families like my sisters.

Thank you for your generosity and your support. No matter how big or small it won't go unnoticed.